Children With Diabetes Foundation News
Thanks to the benevolence and wisdom of some caring parents of a child with diabetes, this was a wonderful week for research funding. These incredible parents wish to remain anonymous, but they were among us as friends last year at the CWD Conference in Orlando! As always, thanks to Children with Diabetes (www.childrenwithdiabetes.com), Jeff Hitchcock's award winning web site. This site allows us to make a difference as a team.
An award in the amount of $50,000 was made to Professor Bob Elliott and the Diatranz team from New Zealand. During his presentation, he showed slides of patients who received the porcine islet cell transplants. Because the islets are transplanted along with sertoli cells in an encapsulation device, NO IMMUNOSUPPRESSION is used. Five of the first twelve are doing extremely well, and one has been completely off insulin for several months. There are no complications among any of the patients, and five of twelve were able to significantly reduce or eliminate insulin. Our funding will help with the next 12 patients who will receive islets, and they will not need to travel as far. The encapsulation device will be significantly refined and improved. My hope is that ten of the next twelve will come off insulin. This is an amazing start, in humans, with an abundant source of clean islets, and this is without immunosuppression!
A personal note: One T cell NOD mouse researcher in the audience vociferously expressed his opinion that NOD mice should be cured first. Dr. Elliott replied calmly and explained that his goal was to cure children rather than mice. It was difficult not to stand and provide an ovation. We can cure NOD mice over 100 different ways now. I wish our children had the same menu of choices.
An award for $25,000 was also awarded for a human islet cell transplant center which is comparing the Type 1 human patients with the CFRD patients. Most of the team either has a child with diabetes or they are diabetic themselves. To get to their lab, they walk through a waiting room of kids just like ours every day. Many of them go home to check their own child's bg levels every night, or they worry about their own bg levels as they work in the labs.
An update was received today on a primary prevention trial our foundation has been promoting. I also met with part of the team in the morning about collecting more samples. We will never forget the other side of the equation. We must ensure siblings and our grandchildren do not get diagnosed with diabetes. The best time to prevent autoimmunity may be prior to the start of autoimmunity. A corporate friend has agreed to sponsor all placebos, samples and also many researchers and staff to help.
How You Can Help
Want to help find a cure? Here's how you can help:
- Diabetes Bear:
Our little Marissa bear is absolutely adorable, and she comes with a poem about diabetes! These bears are $10 each, or only $6 each if you buy 12 or more. They will design a custom tag for your family or company if you order 20 or more. The quality is fantastic, and we just heard the diabetes (Marissa) bear is their number one selling bear!
- Funds For Diabetes
A father of a recently diagnosed teen has a very large photography business and wants to donate all his profits from the program to the CWD Foundation (which is entirely run by volunteers so almost 100% will go to research and/or care opportunities). We figured we are way behind on doing a family photo anyway, and we need to do one for Christmas. You can always stick the photo inside a JDRF Holiday card and support both organizations if you like, or Funds for Diabetes can advise you about options. The cost is reasonable; it is incredibly fun and easy, and if you can get a group of people from the office, block or support group together for a photo shoot. This program is going to be a huge success! He has been doing this for United Way and others for 20 years, but he now wants to donate profits to the CWD Foundation. Give it a try if you can. We just got our photos back, and they are incredibly professional!
Watkins Products sold through one of our parents/members are helping to fund research! Lori Havens gives 100% of her profits to the CWD Foundation, and I've been using the spices, soaps, coffee, tea, etc. This is also a wonderful way to help, and they have incredible gift ideas. Hint: the gift canisters of cinnamon sticks were a huge hit with teachers and friends.
Check out the TAH Handcrafted Jewelry for Christmas. Tim designed a diabetes awareness line just in time for the holidays! Finally something our kids will wear!
- Make a Donation:
You can make a tax-deductable donation to the CWD Foundation. For a donation of $25 or more, you will receive a copy of the video, Managing Diabetic Hypoglycemia, but every donation is important, regardless of the amount. Our foundation also accepts donations of securities.
Let me know if I can answer any questions. There is some amazing research we can fund as a team.Thanks for your help!
Sonia Cooper - mom to Matthew, dx'd at age one, and sister to Tanya, dx'd at age 20
Posted December 9, 2001
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Last Updated: Thursday February 27, 2014 19:28:21
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